KCFPF

Kansas City Pulmonary Fibrosis Support Groups

There are two PF support groups in KC.  These groups allow people with PF and their care partners to discuss and ask questions on Pulmonary Fibrosis.  There are guest speakers to present various topics such Supplemental Oxygen, PF treatments, Pulmonary Rehab, lung transplants, etc. and open meetings for the members to discuss topics of their choice. These interactions are very important to the person with PF and care partners.

Also, the groups host displays that provide information to doctors, nurses, visitors, information service personnel, food service personnel and many others.

Contact Greater KC PF Support Group

For more information fill out and submit form

Contact KC Northland PF Support Group

For more information fill out and submit form

Support Group Member's Stories with Pulmonary Fibrosis

Nick Sloop

Teena Kirkendoll

Pre Transplant 

Pre Surgery

Look Mama No tether!

Support Group Members in the News

In 2020, Bert Maidment climbed 902 steps with the help of an oxygen tank to raise awareness for the American Lung Association.

 

In 2020, Liberty Hospital Connections did an article about Nick Sloop doing a 5K run/walk.

 

In 2018, The Platte County Citizen’s newspaper did an article on Kevin Olson.

History

2019

Sep – The Greater Kansas City Pulmonary Fibrosis Support Group and Pulmonary Fibrosis Support Group of The Northland hosted PF Educational Displays

2018

Sep – The Greater Kansas City Pulmonary Fibrosis Support Group and Pulmonary Fibrosis Support Group of The Northland hosted PF Educational Displays

Sep 25 - North Kansas City Community Center hosted a PF Awareness   Display. Gary Ringo and Kevin Olson manned the display. In a conference room, the "Take Off Pounds Sensibly" (TOPS) Group held a meeting. The leader of the TOPS saw the PF display. She saw importance of the PF Awareness and requested Gary to do a PF Awareness presentation.  

 

Oct 2 - Gary Ringo did a presentation on PF Awareness to the Take 0ff Pounds Sensibly at the North Kansas City Community Center.

 

Sep 3 – 27:  Platte County Community Center North (YMCA) hosted a PF Awareness display. Dana and Kevin Olson designed the display.  All the PF educational material was taken by the

                     Center’s members.

 

Jun 20 - Pulmonary Fibrosis Support Group of The Northland held first meeting.

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© 2019 The Kansas City Foundation for Pulmonary Fibrosis.  All rights reserved