KCFPF
Care Partners
Most people are familiar with the term Caregiver as defined by Merriam-Webster. The Caregiver term is starting to change to Care Partners. Care Partners is a team which consists of the the patient and the support person. This team develops an environment that provides the best quality of life for each person. There could be multiple Care Partners i.e. Spouse, family members, or even close friends.
Merriam-Webster Dictionary:
"Definition of caregiver: a person who provides direct care (as for children, elderly people, or the chronically ill)."
The Pulmonary Fibrosis Foundation 2019 Summit Presentation: "Caregiver" goes into a discussion on Caregiver vs Care Partner. The American Lung Association, Lungs & You, and Pulmonary Fibrosis MD articles address what the PF patient and their supporter could do for each other. This supports the idea that a Caregiver is really a Care Partner.
Pulmonary Fibrosis Foundation 2019 Summit presentation : "Caregiver"
American Lung Association: "Family and Friends"
Lungs & You: "Caring for Your Caregiver"
Pulmonary Fibrosis MD: "5 Things to Know as a Pulmonary Fibrosis Caregiver"
National Organization for Rare Disorders (NORD) has a program aimed at providing caregivers with Relief. It is called "Rare Caregiver Respite Program". It started on May 20, 2019.
Care Partner Marty Postlethwait
