KCFPF

Familial Pulmonary Fibrosis (FPF)

Familial Pulmonary Fibrosis (FPF) or Familial Interstitial Pneumonia (FIP): 

"When two or more members within the same family have Idiopathic Pulmonary Fibrosis (IPF) or any other form of Idiopathic Interstitial Pneumonia (IIP), it is called  The most common definition of FPF is two or more primary biological family members (parent, child, or sibling) with the diagnosis of IPF or IIP.  However, family members can be second degree as well, for example they can be an aunt or uncle, cousins, etc."

source: National Jewish Health

FPF Resources

At the Pulmonary Fibrosis Foundation Summit 2019, Jonathan Kropski, MD of Vanderbilt University presented "Genetics of ILD

At the Pulmonary Fibrosis Foundation Summit 2019, Janet Talbert, MS, CGC Familial Pulmonary Fibrosis and Genetic Counseling.

At the Pulmonary Fibrosis Foundation Summit 2019, Jonathan Kropski, MD and Janet Talbert, MS, CGC Familial Pulmonary Fibrosis and Genetic Counseling Q&A session.

Pulmonary Fibrosis Foundation Familial ILD and Genetics Webinar

Pulmonary Fibrosis Foundation Position Statement on Genetic Testing

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