The Kansas City Foundation for Pulmonary Fibrosis
Dedicated to improving the lives of patients with pulmonary fibrosis and other rare lung diseases
Future Events KC
Nov 2021: Sponorships of two Individuals with Care Partners to the PFF 2021 Summit.
Past Events and News
Oct 2, 2020: Nonin Blog: "Even During a Pandemic, Kansas City Pulmonary Fibrosis Foundation is Finding a Way to Empower Patients"
Stephen P Phillips passed away on September 29, 2020 at home surrounded by loving family. A dedicated family man, Steve is well known for his roles in popular Kansas City bands including Steve, Bob & Rich, The Rainmakers, and The Elders. He was generally a healthy guy who began feeling the affects of his obscure pulmonary fibroses in late 2019. His symptoms progressed rapidly, and he died less than a year later. Stephen’s mother died of pulmonary fibrosis in 2016. The family hopes KCFPF will be able to raise public awareness, explore the genetic connection, and support professionals in working together toward the prevention and cure of pulmonary fibrosis.
There is a Collaborative Video Tribute to Steve Phillips of The Elders called “Right With the World”. It is available for download. Consider a donation to the Kansas City Foundation for Pulmonary Fibrosis in memory of Steve. Click on the donate button. Please indicate in the PayPal note: “In honor of Stephen Phillips.