KCFPF

Treatments

Medication

In Oct 2014, the FDA approved Esbriet® (pirfenidone) and OFEV® (nintedanib) for treatment of Idiopathic Pulmonary Fibrosis. These drugs are not a cure for Pulmonary Fibrosis but they slow down the progression of scarring in the lungs.

Genentech makes Esbriet. Go to Genentech website for more information.

Boehringer Ingelheim makes OFEV. Go to Boehringer Ingelheim website for more information.

Talk with your doctor to see if Esbriet or OFEV is right for you.  The use of Esbriet and OFEV for various Pulmonary Fibrosis diagnosis are expanding every day.

Also, Pulmonologists prescribe other medication such Prednisone.  In the middle of the Pulmonary Fibrosis Foundation Treatment Options website page discusses various other medications.

Supplemental Oxygen

Oxygen Therapy could benefit a person with PF by reducing  breathlessness and fatigue, and provide an active lifestyle when using oxygen. With permission from their doctors, they can jog, work out, and play sports while using oxygen. (PFF oxygen therapy)

A symptom of Pulmonary Fibrosis is shortness of breath.  Overtime, the shortness of breath could worsen and a person might need to use Oxygen. 

Sometimes a doctor will use a six minute walk to determine if a person needs to be on supplemental oxygen. This American Lung Association link describes the six minute walk.

This American Lung Association link describes Oxygen Therapy.

Pulmonary Rehabilitation

Pulmonary Rehab is a specialized program to combine exercises and education to people who have a lung disease such as PF. The exercise can help you breath better and provide quality of Life.

This information is prepared and presented as a service to you from the American Association of Cardiovascular and Pulmonary Rehabilitation (AACVPR)

 

PULMONARY REHABILITATION! An Individualized Supervised Program For You 

 

Pulmonary Rehab Resources


To find the nearest Pulmonary Rehabilitation Program go to https://www.aacvpr.org/Program-Directory

The Basics of Pulmonary Rehabilitation by the American Lung Association.

Lung Transplant

American Lung Association states "In pulmonary fibrosis, once the lung tissue becomes scarred, the damage cannot be reversed. Because of this, lung transplant (a surgical procedure that involves replacing one or both of your diseased lungs with healthy lungs) is a treatment option your doctor may suggest." Also the association provides information on the lung transplant evaluation process.

When considering a lung transplant, the Care Partner is critical. 

Lungs & You: "About Lung Transplants"

The Pulmonary Fibrosis Foundation PF Treatment website page discusses the option of a Lung transplant. The information is about in the middle of the page.

Teena Kirkendoll, Transplant Recipient

Pre Transplant 

Pre Surgery

Look Mama No tether!

Kevin Olson's friends Greg and Paul are part of his Care Partner team. They wrote stories on Kevin's Lung Transplant Journey.

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